Development of melanoma clinical quality indicators for the Australian melanoma clinical outcomes registry (MelCOR): A modified Delphi study.

BACKGROUND: Clinical quality registries aim to identify significant variations in care and provide anonymised feedback to institutions to improve patient outcomes. Thirty-six Australian organisations with an interest in melanoma, raised funds through three consecutive Melanoma Marches, organised by Melanoma Institute Australia, to create a national Melanoma Clinical Outcomes Registry (MelCOR). This study aimed to formally develop valid clinical quality indicators for the diagnosis and early management of cutaneous melanoma as an important step in creating the registry. METHODS: Potential clinical quality indicators were identified by examining the literature, including Australian and international melanoma guidelines, and by consulting with key melanoma and registry opinion leaders. A modified two-round Delphi survey method was used, with participants invited from relevant health professions routinely managing melanoma as well as relevant consumer organisations. RESULTS: Nineteen participants completed at least one round of the Delphi process. 12 of 13 proposed clinical quality indictors met the validity criteria. The clinical quality indicators included acceptable biopsy method, appropriate excision margins, standardised pathology reporting, indications for sentinel lymph node biopsy, and involvement of multidisciplinary care and referrals. CONCLUSION: This study provides a multi-stakeholder consensus for important clinical quality indicators that define optimal practice that will now be used in the Australian Melanoma Clinical Outcomes Registry (MelCOR).

Embitterment during the COVID-19 Pandemic in Reaction to Injustice, Humiliation, and Breach of Trust

The COVID-19 pandemic has not only had an impact on the health of many people, but also on politics, the economy, and everyday life at large. It has been shown that some people respond with anxiety and depression, which is not surprising. Another reaction in the context of COVID-19 is embittered fights and disruptions between family members, friends, and neighbors, but also problems on a societal and political level, mutual public insults, political demonstrations, and even aggressive outbursts with a high number of participants. This calls for a separate explanation. One trigger may be embitterment, an emotion known to anybody in reaction to injustice, humiliation, and breach of trust, in association with helplessness. It comes along with a nagging desire to fight back and is usually accompanied by aggressive fantasies and combatively impulses towards the wrongdoer. This emotion also spreads indiscriminately to other people and the world. There are few initial studies which show that there is a significant increase in the rate of embitterment during the COVID-19 pandemic. Increased embitterment was related to financial losses, concern about restricted societal freedom, job insecurity, oppositional attitudes, helplessness, dissatisfaction with life, and inclination to join anti-COVID-19 demonstrations. These findings suggest that it is important to foster resilience against stressors, be it because of the virus itself, restrictions in daily freedom, negative comments by other persons, or imbalanced press releases. Of importance is also to abstain from insulting comments towards people who do not follow the mainstream, to allow adjustment of rules to given situations, and to take people along by listening to their grievances, instead of leaving demonstrations on the street as the only method to voice concerns.